Our social media campaign #myEDSdiagnosis invites people to share the length of time it took to reach a diagnosis relating to Ehlers-Danlos syndromes. If you would like to share your picture, tag a photo of yourself with the length of time to diagnosis on Instagram and tag it with #myEDSdiagnosis. We will be continuing to share images here showing how diverse people who identify with EDS can be and how the illness affects each of them in different ways. 

Thank you to all those who have joined our social community and shared their photos with us this year. 

Latest posts from Instagram:

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Past posts: