'A gateway of hope' for Ehlers-Danlos syndromes

Mind Body EDS aims to be at the forefront of making a difference every day to the lives of people with Ehlers-Danlos syndromes and their families. We are committed to having a positive impact for everyone affected by Ehlers-Danlos syndromes, to ensure each individual’s health outcome is neither determined nor disadvantaged by their personal means.

We confront Ehlers-Danlos syndromes on all fronts - through advocacy and awareness, together with financial and research support - to help save lives and improve individual sufferers’ quality of life.

Our vision is for a world where diagnosis of Ehlers-Danlos syndromes no longer takes decades, in order to prevent the condition from causing disabling and life-threatening complications. 



Global Affiliates


Mind Body EDS are proudly part of The Ehlers-Danlos Society Global Affiliation Network, To amplify these efforts, Hundreds of local support groups and charities are working hard to help those with EDS and HSD in their communities throughout the world. The Ehlers-Danlos Society collaborates with outstanding regional and local support groups, charities, and societies.