New charity provides ‘gateway of hope’ to EDS sufferers

The press release accompanying the launch of our charity can be found here.


Note to Editors: About Mind Body EDS

Mind Body EDS is a new charity aimed at raising awareness amongst the public and medical community about the range of Ehlers-Danlos syndromes. Its goals include providing financial support to individuals and families to enable effective early diagnosis and treatment, as well as towards EDS research. EDS is a group of genetic conditions affecting the body’s connective tissue resulting from collagen defects. Collagen essentially acts as a ‘glue’ keeping the body from falling apart and is responsible for supporting the skin, tendons, muscles, ligaments, blood vessels, bones, eyes and vital organs and therefore affects the entire body. Common symptoms are: dislocations/subluxations of joints, chronic pain and fatigue, easy bruising, aortic and/or organ ruptures, palpitations, digestive disorders and other comorbidities. For more information, please visit the website at